Sick chicks

Discussion in 'Wellness' started by CoolWife, Mar 4, 2020.

  1. Afishwish

    Afishwish Bramblebutt

    Out of the loop and just now seeing about C2 - I’m sorry he needs this and how rough the last few days must have been. Glad he’s home.
     
  2. Imabug1002

    Imabug1002 Chick pee

    I’m glad he’s home and I hope this is a quick stint with the tube.
     
  3. CoolWife

    CoolWife Chicken

    C2 is fine. We are not dealing with huge medical issues that will impact the rest of his life. But shit guys. The intensive program 2+ hours away will take him, but there’s a 15-18mo waitlist. Well if he still won’t eat in over a year, yeah, I’ll take FMLA and move over there for the 6-8 weeks. Driving to (well back was worse) the evaluation was hell. We had to stop and change him 3 times because he was so upset he puked. Which means trying to get barf out of the car seat before putting him back in, too.
    Now today we used the last of his tube feeding supplies. They usually come on Thursday so I didn’t even think twice about it being the last ones. Yeah except this week it’ll maybe be here Saturday, just wash and reuse it until then.
    THEN he barfs all over D after IL’s let him play and crawl up the stairs and have a great time right after he finished his last feeding. So another bath and a couple hours later we decide we’ll feed him a little more, since he’s actually been losing weight again.
    The mfing tube split open. I can’t make this up. It was just going all over his helmet and me. Ew. So we had to wake him up to get the fucked up one off his face and I refused to put in another until morning. We just put it in Sunday and it was awful, we could not get it in one side of his nose. You’re supposed to switch every time.
    Oh and that intensive program. They recommended a couple more GI procedures and even going to a G-tube, which is also surgery. They won’t work with him until he quits puking, because no shit he doesn’t want to eat.
     
  4. virgo

    virgo Chicken

    Jeff Goldblum CW, that sounds absolutely awful. I’m so sorry you guys are going through this. I really hope C2 gets better soon. <3
     
  5. Afishwish

    Afishwish Bramblebutt

    Jesus, just saw this. I’m so sorry, CW. Poor little buddy, and damn you all are going through it. How’s he doing today?
     
  6. CoolWife

    CoolWife Chicken

    Happy AF, as usual. MIL is here taking care of him during the day.
    Still doesn’t eat - a few bites/sips a couple times a day. Had to add more calories but I think he’s finally gaining weight again.
    We’ll keep doing the feeding therapy here once a week. His supplies came, and this is just life now.
     
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  7. CoolWife

    CoolWife Chicken

    What a difference a few months make. We took out C2's feeding tube a couple weeks ago, and so far he's doing good. He's not gaining a ton of weight, if any, but he's also been snotty sick the last few days. The meds GI put him on (after a scope and upper GI) have helped a TON. He's actually eating and not puking. Like, once a week instead of once a day (or more!). He is HILARIOUS. I know everyone thinks their kids are the funniest, but he has us rolling on the reg. He loves words and has definitely figured out they have the power to get him what he wants. He is much more outgoing than C1 ever was (which is ok! they are different kids!), it's so fun to watch him interact with other people and try out new stuff all the time. He repeats everything we say so we have to watch our language, LOL. Walking is also a few months new, and he's getting fast. It just makes my day when he comes running around the corner "MOMMY MOMMY MOMMY UP!" and gives me a sweet hug or a kiss (or just tries to steal my mouse).
    Feeding him is still a thing, he doesn't eat everything (but he loves pizza), we use the blender a lot, and we have to sneak in extra calories everywhere. But it's nice to not have to spend so much time getting him to sit still for a tube feed or fighting him to eat a few bites and cleaning up puke.
     
  8. megatron

    megatron Wordsmith Staff Member

    This is such a wonderful update!!!
     
    CoolWife likes this.
  9. Afishwish

    Afishwish Bramblebutt

    That’s fantastic! Glad to hear he’s thriving!
     
    CoolWife likes this.
  10. virgo

    virgo Chicken

    So glad to hear he is doing much better!