guys. Finding out your kid isn’t 100% perfect and set up for an easy life is always a blow. Obviously you are doing absolutely everything to make sure they have the best care and outcomes and are not at all to blame for any issues they will ever face. C2 started daycare this week and is already home sick so that’s how that’s going.
@megatron I’m sorry you guys are going through that. I have to imagine the uncertainty of his situation is maddening. When do you find out more?
He will do another blood test next Friday so probably hear back early the following week on those results. He also will get a urine test so that will be interesting for a baby lol. Then if the numbers are still high, we will get the referral to a specialist, so not sure how long it would take to get that appointment and then it’s more evaluation I guess to see. So it could still be nothing, or it could be something. I’m trying to keep the perspective that it doesn’t change him at all - it’s just a diagnosis (if there is one) that will give us information on a possible path forward. Although it of course means a potentially different life than we expected for him, but that doesn’t mean it’s bad news either. Oh and the doctor also said muscle enzymes can be high from injury and he’s a small guy who regularly gets run over and beat on by the older toddlers at day home or smashes his own head into things as toddlers do, so maybe it’s just that? I’m not getting my hopes up though because with the gross motor delay and low muscle tone, the blood test just supports that, so...we will see I guess.
We did S’s next blood test yesterday (and urine test today, which was interesting with a stick on bag that you tuck their little bits into so it collects the urine sample). The doctor must have got results quick because he called today. All the tests came back normal and nothing to worry about!!! I am so relieved. I cried and A was concerned for me, even though I told her they were happy tears lol. Looks like our little guy is just on his own curve for gross motor, but he’s making great progress at physio, so we will keep up with that until he’s walking and all caught up.
Best news @megatron ! So relieved for you and Baby S! Side note - those little pee bags for babies can be a huge pain in the ass. Doubly glad for y'all that it worked out smoothly.
hahaha it definitely took multiple attempts. I feel like those bags would be worse for a girl though, since at least with a boy, you can tuck all the bits into the hole, then stick it down around that. It cannot be comfortable having a bag bunched up in your diaper though. Thank you all for the well wishes. You never want to think the worst, but it’s also so hard not to worry when it’s your child. We all just want our kids to have a happy, easy life, as much as possible.
C2 got cath’d both times they needed urine because they couldn’t get it with the stupid bag. He was also teeny tiny so more challenging. So C2 has been in daycare for a couple weeks now. Turns out it’s not actually helping my productivity at work since I just worry and watch him on the cameras. But about him. Week one he got sick Wednesday evening. Home Thurs/Fri. Week two he made it all week but now today (Sunday) he has a snotty nose again. Non-pandemic times would be whatever but of course we have to keep him home and maybe have to keep C1 home from his in-person days too. C2 is miserable. This time he’s got some serious drainage and it’s really upsetting his little tummy. He’s eating even less than normal, and today barfed up just about everything he did eat. At least he’s still a good sport about eating solids (well, smooth purées or yogurt only), since the past few days he’s had like 4-5oz to drink all day. Today was a little better, but see above re:vomit. We totally expected him to be sick as soon as we took him out of the house but damn. Poor little dude.
Ugh sorry CW. That’s rough for everyone. The day care sicknesses from germy kids gets everyone, but that especially sucks during Covid times. Poor C2. Little guy just cannot catch a break
The baby slept all night in his room two nights ago and it was too good to be true because he was up at 12:00, 12:30, 1am, and then of course crashed as soon as we put him our bed. *yawn* At least he’s big enough I’m not worried about suffocating him, and he’s actually a good snuggler so he doesn’t disturb us too much. But the poor guy has just been so disrupted since his hospital stay. And he’s “eating” so much more that he wakes up to vomit.
40 is too old to have a baby that doesn’t sleep. Consider this in your future family planning. He was up twice (briefly thank Jeff Goldblum) right as we were trying to go to sleep, but then he slept until after 8! In his crib! C1 came in to say good morning and looking around and says “where’s C2?” “In his room still sleeping!”
That is definitely one factor in us not going for 3. Just in 4 years I can feel how much less energy I have with this one.
Is there a yawn emoji? I don't even remember what time it was when D grabbed C2 and put him in our bed, but it was definitely before 6am when he started kicking me and flopping all over and then trying to crawl away. 6am would be reasonable if I had been in bed before 1am, but we were on the road listening to him scream and puke half the day. And then there's the 6 year old. Virtual school was a disaster. He shattered his iPad a couple weeks ago (something was glitching so he smashed it), so we stuck a protector on it for the last week and just turned it in like that (we did call to see what we should do and were told to just turn it in and they'd charge us if they had to). In person school was amazing. He loves it! Loves his teacher! Has new friends who even live close! Doesn't want to go to first grade but is actually really proud of himself for making it. Now daycare/summer camp. He was struggling with virtual school AT daycare and a lot of that has carried over. His little friends don't want to play with him and he gets really hurt and upset, and gets in trouble for throwing shit. They don't want to play with him because he gets in trouble and is kind of a dick. Now the other kid is hurting him because he won't take no for an answer and yesterday he scratched the teacher. D and I have VERY different ideas of what the actual problem is and I just can't. The principal is really great, she told me she is struggling with some similar issues with her kids. Her 21 year old is acting out because her 18 year old is getting all the attention (he was in a really, really bad car wreck and needs a lot of care now). But he can't continue to break shit and hurt people. Hopefully the psychologist writes me back before his appointment next week.
Haha who am I? C1 came down at like 3am saying he didn’t feel good. Fine, sleep here. C2 is up at 6am. Cool, sleep here. Thank Jeff Goldblum we have a big bed. I am so not a co-sleeper but I am so, so tired.
Is it normal for kids to both regress and generally go feral during growth spurts? It’s always been the case with Fry, but I feel like the last 6 months it’s been worse (though maybe that’s because of baby). A month ago he was his optimal self. Happy, mellow, sweet, and more social. He was visibly filled out during that time. About three weeks ago he woke up with that gangly look and I just thought “oh, fuck”.